Trustees

I was diagnosed with RRMS at 21 in 1986, though I can trace it back in GP notes to 1982. Despite being originally informed I would be in a wheel chair within 10 years, I have managed to stay fully mobile.

Alison is an experienced business development adviser and trainer, with a background in speech and drama.

I was diagnosed with RRMS in December 2014. My MS became very aggressive in 2016 and it was suspected to have transitioned to SPMS.

In March 2018 Damien went to Moscow and received HSCT to halt his MS progression. So far so
good!

I was diagnosed with MS in 2011. Initially, I was able to carry on as normal. However, the progression of my MS seemed to accelerate in 2015, transitioning to SPMS, which prompted me to seek treatment.

A sudden major relapse resulted in a completely unexpected diagnosis of RRMS in June 2015.   A fast and aggressive progression meant that by the time she underwent HSCT in Moscow in July 2017, she had an EDSS score of 6.5 and was confirmed to have SPMS.

I was diagnosed in 2016 with  aggressive RRMS.  I went to Russia for HSCT in 2019 after quick progression to SPMS

I was diagnosed with highly active remitting and relapsing MS with symptoms that had started to affect my mobility. From symptoms (Jan, 2018) to diagnosis (April 2018) to treatment (August,2018), all happened within the same year!