Testimonials

AIMS talked to people from all over the world who have received HSCT. Many of these people had to travel overseas for treatment, because they couldn’t access treatment at home. This video contains the experiences of people both with RRMS and Progressive forms of the disease - in every instance, their progression has been halted and their MS is now in remission.

Many of the people in these videos have experienced symptomatic improvements but this can vary and is not guaranteed. Any symptomatic improvements are a bonus - the aim of HSCT is to halt further progression which is what it does in the overwhelming majority.

 

Please share this video and help us to make the unseen seen. HSCT for Auto Immune and Multiple Sclerosis

In order to compile this video, we collected a number of 30 second patient testimonial videos. You can read the transcripts and listen to the audio below.   You can see all the following videos on our YouTube Channel here:

  • YouTube

HSCT Case Study

[21 months post, brain fog, secondary progressive, fatigue]

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00:00 / 01:04

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"I had HSCT 21 months ago for my secondary progressive multiple sclerosis. There are three main reasons why I'm really glad that I did it. Firstly, all progression has been halted so far. secondly, I've had improvements in balance, fatigue and brain fog, thirdly, it means I can look forward to the future instead of worrying about how I'll be in the future"

HSCT Case Study 10

[12 months post, bladder, bowels, balance]

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00:00 / 01:04

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"I'm one year post HSCT. And the big improvements for me are the three B's my bowels, my bladder, and my balance. It's been absolutely incredible. I thank Dr. Ruiz every day for giving me my life back"

HSCT Case Study 12

[5 weeks post, bladder, stiffness, pins & needles]

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00:00 / 01:04

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"I'm five weeks post treatment improvements so far are less stiffness in my legs and bladder improvement. Pins and needles in my hands are improving and I'm saving a fortune on shampoo"

HSCT Case Study 13

[fatigue, heat intolerance]

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00:00 / 01:04

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"Thanks to HSCT, I don't have any pain anymore. I don't have any heat intolerance and I don't have any fatigue anymore. I can spend full days at the beach in the sun. I've got the energy to chase my little boys around. I don't have to nap anymore. I've got the energy to be the mum that I want to be again, HSCT has given me my life back"

HSCT Case Study 14

[complete game changer, Moscow]

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00:00 / 01:04

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"Hi all, just to say how grateful I am to have been able to have HSCT in Moscow in March 2017 it's a complete game changer. I first found out in Australia about it from a patient in Queensland. So I went on the list and waited three years to get to Russia, which was a long wait but worth it gave me time to get all my ducks in a row and get the money etc, etc. But yeah, I would advise anybody if you thinking about it, really look into it; consider it. It's an amazing treatment and the care in Russia is second to none. So if you decide to go there, well done.Bye from Australia"

HSCT Case Study 15

[Relapses, Sheffield, progression, L'Hermittes]

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00:00 / 01:04

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"I had HSCT in Sheffield, two years ago on the MIST trial. And I'm here today cycling around Ladybower Reservoir. I'm two years without any relapses or active progression. And I've had less symptoms. My leg's not collapsed for over a year and a half. And I've not had L'Hermittes syndrome either though, for those exactly the same amount of time. So, life is good"

HSCT Case Study 16

[12 months post,brain fog, progression, fatigue, hope]

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00:00 / 01:04

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"I'm really happy to be doing this video about how HSCT has changed my life. I had HSCT My birthday is April 10 2017. So it's been a little over a year ago. And immediately, my brain fog lifted, my fatigue was less, I could lift my leg. And what I didn't realise is how much hope I would have for the future. And I didn't realise I didn't have hope until I found out about HSCT and then I started having hope. I highly recommend HSCT for anybody. Oh, the other incredible thing is that my progression has stopped"

HSCT Case Study 17

[9 months post, secondary progressive, depression, foot drop, anxiety"

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00:00 / 01:04

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"I had HSCT, nine months ago for my secondary progressive Ms. Not only has my progression stopped, but every single symptom has improved and I have had no more foot drop since since transplant so my rollator has been hanging for seven months in the garage I am also able to enjoy time with my two girls again, and enjoy family days out and and just participate in family life, something I hadn't been able to do. And also the fear and anxiety of the future has been taken away, which is probably one of the most massive things to come out of this as I was so depressed and anxious all the time. And life was literally passing me by. So I am living life again looking forward to the future. And I can honestly say that this has changed mine and my family's life beyond what I ever could have imagined"

HSCT Case Study 18

[12 months post, worsening symptoms]

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00:00 / 01:04

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"So I had HSCT almost 12 months ago. My three reasons for why I'm really glad I did it are that I no longer wake up in the morning worried about what my future will be. I feel like I'm working on improving. So I no longer have this scenario of two steps forward and 10 back when a relapse comes, and I have my future with my family again"

HSCT Case Study 2

[14 months post, walking, fatigue, improvements]

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00:00 / 01:04

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"Hi - 14 months post HSCT, improvements are far less fatigue. Walking is a little better sometimes. It's probably the only chance you'll get at doing anything. And I actually go to the gym twice a week now and swimming once a week. I'm really not sure I could have done that earlier. I was actually counting how long I got until I'd stopped walking, which I don't even think about too much now. It's a really good chance. Go for it"

HSCT Case Study 3

[5 years post, relapsing remitting ms, Moscow]

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00:00 / 01:04

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"I had HSCT done in Moscow five years ago this week for my relapsing remitting ms, which has been completely halted since that time. I can say that one of the best things about HSCT is taking the fear away of your future of what might be gone. When you wake up each morning. What might what ability might be taken away from day to day, week to week, month to month you just never know. The other thing is it's allowed me and my family to dream again and plan for the future again, without having to factor in where I might be with my disease. Will I be disabled completely? Will I need nursing care? Will we need to budget for that? I can travel again, we can take trips again. It's really the best gift I've ever given myself. Thank you so much"

HSCT Case Study 4

[falls, walking stick]

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00:00 / 01:04

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"HSCT absolutely rocks. I had a fantastic day out yesterday with my mom. We went to the theatre, ate good food, drank wine, and I wore heels all day long, well, kinda heels. Last year we went to the theatre. I fell, I took my stick, I couldn't walk. My EDSS is now 2.5 whereas it was 5.5"