Privacy Policy
Who We Are
Auto Immune and Multiple Sclerosis (‘we’ or ‘us’ or ‘our’) gather and process your personal information in accordance with this privacy notice and in compliance with the relevant data protection Regulation and laws. This notice provides you with the necessary information regarding your rights and our obligations, and explains how, why and when we process your personal data.
Our registered office is at 48 River View, Tarleton, Preston PR4 6EQ, and we are a charity registered in England and Wales under charity number 1177907. We are registered on the Information Commissioner's Office Register; registration number ZA497848, and act as the data controller when processing your data. Our designated Data Protection Officer/Appointed Person can be contacted at 48 River View, Tarleton, Preston PR4 6EQ, or by email - dpo@aimscharity.org.
We process your personal information to meet our legal, statutory and contractual obligations and to provide you with our products and services. We will never collect any unnecessary personal data from you and do not process your information in any way, other than as specified in this notice.
Information That We Collect
The personal data that we collect from is: -
General Enquiry/Contact via website form/chatbot
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Name
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Phone
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Email
HSCT Travel Grant Applications
The following data is collected in addition to those above
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Address
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Medical Condition
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Date Of Diagnosis
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EDSS
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HSCT Facility
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HC2 Certificate Held (applicable for treatment in UK only)
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HC2 Eligibility (applicable for treatment in UK only)
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Confirmed Treatment Date
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Copy of Acceptance Letter
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Mode Of Travel
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Details of Personal Journey (MS Story)
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Other Funding Secured
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Flight Cost
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Details of Train Journey
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Details of Taxi Journey
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Details of Car Journey
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Grant Amount Requested
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Terms & Conditions Declaration
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Signature
Your Rights
You have the right to access any personal information that we process about you and to request information about: -
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What personal data we hold about you
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The purposes of the processing
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The categories of personal data concerned
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The recipients to whom the personal data has/will be disclosed
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How long we intend to store your personal data for
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If we did not collect the data directly from you, information about the source
If you believe that we hold any incomplete or inaccurate data about you, you have the right to ask us to correct and/or complete the information and we will strive to do so as quickly as possible (and in any event, within 30 days of you notifying us); unless there is a valid reason for not doing so, at which point you will be notified.
You also have the right to request erasure of your personal data or to restrict processing (where applicable) in accordance with the Data Protection laws; as well as to object to any direct marketing from us. Where applicable, you have the right to data portability of your information and the right to be informed about any automated decision-making we may use.
If we receive a request from you to exercise any of the above rights, we may ask you to verify your identity before acting on the request; this is to ensure that your data is protected and kept secure.