Mark Rye

Trustee

Much like Becky, Mark was fortunate enough to have qualified for HSCT under the UK NHS criteria in 2016 and had the procedure carried out in Hammersmith, London. It was whilst he was going through the procedure that he decided that he would help try to raise awareness of HSCT - then AIMS came along, a calling some might think? 


Mark was first diagnosed with RRMS at the age of 30 where he went untreated for 2 years before being referred and spending 18 months on Rebif Interferon with no response. Mark’s MS had changed to become highly active during the next 7 years whilst he was on Tysabri. Having stopped the Tysabri to see how his MS would react pre-HSCT, he ended up showing new and active lesions.

Since his transplant, Mark has become stronger in some areas with no medical intervention other than yearly consultancy appointments. Mark’s life has changed and he has a future with his family - now it’s time to give something back.

Mark is married with two very young boys who keep him on his toes. He works full-time as the Head of Quality and Compliance for an educational charity in Surrey. Mark has over 25 years volunteer and charity experience at all levels and holds degrees in charity management and volunteer leadership and management.

 
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